Box 24-2 ESLI QUESTIONS RAISED BY THE HUMAN GENOME PROJECT . Who should have acc

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Box 24-2 ESLI QUESTIONS RAISED BY THE HUMAN GENOME PROJECT . Who should have access to personal genetic information, and how will it be used? . How does personal genetic information affect an individual and society's Who owns and controls genetic information? perceptions of that individual? How does genomic information affect members of minority communities? Do healthcare personnel properly counsel parents about the risks and limitations of genetic technology? How reliable and useful is fetal genetic testing? What are the larger societal issues raised by new reproductive technologies? How will genetic tests be evaluated and regulated for accuracy, reliability, and utility? (Currently, there is little regulation at the federal level.) How do we prepare healthcare professionals for the new genetics? How do we prepare the public to make informed choices? How do we as a society balance current scientific limitations and social risk with long-term benefits? . Should testing be performed when no treatment is available? . Should parents have the right to have their minor children tested for adult-onset diseases? Are genetic tests reliable and interpretable by the medical community? Do people's genes make them behave in a particular way? Can people always control their behavior? What is considered acceptable diversity? Where is the line between medical treatment and enhancement? Are genetically modified foods and other products safe to humans and the environment? . How will these technologies affect developing nations' dependence on the West? Who owns genes and other pieces of DNA? Will patenting DNA sequences limit their accessibility and development into useful products?

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